How CJ's Fund Helps

Henry's Parents

At my 20 week scan we found out that Henry’s brain was not developing properly. At one month old he was diagnosed with Foxg1 syndrome. He has a trach, uses a ventilator overnight, has a g-tube and has suffered from seizures since birth. Henry spends a lot of his time with EI. He is a strong little guy who has made tremendous improvements and we are so proud of him every single day. We wanted to thank you and your donors for our CJ Fund grant. We’ve used this to help pay for his physical therapy; when he was born the doctors told us he wouldn’t walk, but with intensive PT we are all determined to prove them wrong!

- Henry's Parents