
The Mackey Family
Our son, Robbie has neurological disorders that make it impossible for him to move parts of his mouth, tongue and throat and prevents him from forming intelligible words. It causes incredible frustration, as he is not able to express his thoughts, wants, needs etc. After a long battle we received a helpful medical device that allowed him to push buttons associated with words. Initially we were told it was fully covered by our insurance, but after completing the required 2 month trial, and seeing much hope as Robbie was starting to feel heard, we got a very large bill. After many phone calls and inquires to resolve the unexpected bill, I realized that our only options were to explore other devices (which can take up to 6 months), or pay the bill. Financially, we were not in position to pay for the device. I explained the situation to our EI coordinator and SLP, Kristin. I felt totally discouraged and sad that we would have to consider changing his device and explained our situation to Kristin. I asked if EI ever helps families out with this kind of a need. Within an hour of talking to her she called with the most incredible news. There was “CJ’s Fund” and it was going to mean Robbie could keep his device. As tears filled my eyes I felt such appreciation and gratitude.
- The Mackey FamilySee More
- 2023 Charlie CJ;s Fund Grant Recipient
- 2022 Henry CJ Grant Fund Recipient
- 2022 Hazel CJ Fund Grant Recipient
- 2021-Delaney 2021 CJ Fund Grant Recipient
- 2017 – Pediatric Development Center
- 2017 – Thom Anne Sullivan Early Child Programs
- 2017 – The Couch Family
- 2017 – The Friedman Family
- 2017 – Avery
- 2015 – Pernet Family Health
- 2015 – The Zhang Family
- 2015 – Thom-Westfield Infant Toddler Services
- 2015 – The Poulos Family
- 2015 – Anonymous Recipient
- 2015 – Criterion
- 2014 – Criterion-Heritage
- 2014 – Anthony, Melissa, Stella, and Tessa
- 2014 – Cape and Islands Early Intervention
- 2014 – Ross and Ashlee
- 2014 – Aimee and Rob
- 2014 – Pernet Family Health Service
- 2013 – Thom Neponset Valley Early Intervention
- 2013 – Associates for Human Services
- 2013 – REACH Program
- 2013 – Pediatric Development Center
- 2013 – Criterion-Medford EIP
- 2013 – Keri and Grant
- 2013 – Jake and Colleen